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Solutions mixed with sterile water must be used within 24-72 hours

The dry material should be stored in a cool, dry environment away from direct light

Supplementing with vitamin B6 (pyridoxine) can support this approach, potentially halting or slowing retinal degeneration, especially when started in childhood or at a young age

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Written protocol with documented endpoints: reconstitution instructions, dose, frequency, expected timeline, and what to monitor

J Biol Chem 274:90069012